Turner Syndrome Awareness Month

Turner syndrome (TS) is a chromosomal condition that usually describes girls and women with common features, physical traits, and medical conditions caused by the complete or partial absence of the second sex chromosome. TS was first described in the United States in 1938 by Dr. Henry Turner. New information about TS is revealed as research and science progress. At the basic level, people with Turner syndrome are missing genetic material that prevents their bodies from growing and maturing naturally. Turner syndrome is variable, and each person will have unique health needs and characteristics.

Occurrence

TS occurs in approximately one out of every 2,000 to 4,000 live female births yet is estimated to affect 3% of all female babies conceived. Heartbreakingly, only 1% of babies with Turner syndrome will survive the pregnancy. If you have received or suspect a prenatal diagnosis of TS, we recognize many answers to your questions are unknown. Please contact us to connect with our exceptional staff and volunteers who are committed to offering information and support throughout pregnancy. We know how you are feeling and offer judgment-free support.